Once the ventricular septal defect (VTE) is corrected, you or your child will need a lifetime of follow-up so that doctors can monitor your condition and check for any signs of complications.
Your doctor may recommend that you or your child regularly visit a doctor who specializes in congenital heart disease. During follow-up visits, your doctor may examine you or your child and prescribe imaging tests to monitor your condition or that of your child.
Here are some tips for managing your condition or your child’s:
Think carefully about pregnancy. Before you get pregnant, talk to a doctor who has experience with heart disease (a cardiologist) to determine if you can safely transfer the pregnancy. This is especially important if you are taking medication. It is also important to visit an obstetrician and cardiologist during pregnancy.
Surgical closure of the IVF without complications or with a small defect does not pose an additional risk to pregnancy. However, the presence of a larger non-operated defect; heart failure; pulmonary hypertension; heart rhythm abnormalities; or other heart defects pose a high risk to both the mother and fetus. Doctors strongly recommend that women with Eisenmenger’s syndrome do not get pregnant because of the high risk of complications.
Prevention of endocarditis. You or your child usually do not need to take antibiotics before certain dental procedures to prevent infection of the inner lining of the heart (endocarditis).
However, your doctor may recommend antibiotics if you have had endocarditis in the past, heart valve replacement, if you have recently had a DVT closure using artificial material, if you still have residual flows through the DVT, if you have a large ventricular septal defect causing a decrease in oxygen levels.
For most people with a ventricular septal defect, good oral hygiene and regular dental checkups can prevent endocarditis.
Follow the recommendations for physical activity and sports. Your doctor can advise you which activities are safe for you or your child. If some activities are particularly dangerous, encourage your child to engage in other, safer activities. Keep in mind that many children with DMD can lead healthy, fully active and productive lives. In children with small defects or a healed hole in the heart, there are usually few or no restrictions on activity or exercise. Children whose heart does not work normally should follow certain restrictions. The child with irreversible pulmonary hypertension (Eisenmenger’s syndrome) has the greatest number of restrictions.